Latest News

The countdown to World Haemochromatosis Awareness Week 2022 is on! Over the next couple of weeks, watch out for interviews with our members, volunteers and supporters in the media! To mark World Haemochromatosis Awareness Week, 1st – 7th June 2022, City and County Councils thoughout Ireland are also supporting our awareness campaign and will ‘Light Up Red’ iconic public buildings during World Haemochromatosis Awareness Week. We have also this year teamed up with the GAA in a health promotion partnership to help raise more awareness of Ireland's most common condition and ensure that everyone is aware of the symptoms and how to get checked. GAA All Star, David Beggy, is our brand Ambassador and is doing amazing work to promote more awareness of haemochromatosis in Ireland.

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PLEASE NOTE: THE DATE OF OUR NEXT INFORMATION EVENING HAS CHANGED TO 1st MARCH 2022 at 7pm. Dr. John Ryan, Consultant Hepatologist & Gastroenterologist and Haemochromatosis Specialist Nurse, Fiona Colclough from Beaumont Hospital, Dublin will present a free Online Information Meeting on haemochromatosis now taking place on Tuesday, 1st March at 7pm via zoom. The original date of 22nd February 2022 has now changed. For more information and the zoom link for this event, email Miriam at [email protected] All are welcome and we look forward to seeing you!

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Enter our 'Go Red' for haemochromatosis competition this Christmas! The winner will get a €100 One4All voucher. For a bit of Christmas fun this year, wear anything red, a jumper, hat, gloves, socks, take a selfie or get your friends or family to take a photo and tag us #GoRed OR email your photo to Miriam at [email protected]

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Our Winter 2021 Newsletter for Members & Supporters is out now. You can find all the latest news from our volunteers and members. Thank you to everyone who contributed!

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Dr. Gerard Crotty, Consultant Haematologist and Nurse Colette Ceary, Midland Regional Hospital, Tullamore will present a free online information event via zoom on haemochromatosis or 'iron overload' on Tuesday 30th November at 7pm. For more information email [email protected]

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1 IN 5 IRISH PEOPLE CARRY THE HAEMOCHROMATOSIS OR ‘IRON OVERLOAD’ GENE – EARLY DIAGNOSIS IS ESSENTIAL World Haemochromatosis Awareness Week 2021, takes place this year from Tuesday 1st June to the 7th June. This year we are lighting up civic and iconic buildings in Dublin, Cork and Limerick to mark awareness week and ask the public to come behind the campaign. Early diagnosis of haemochromatosis saves lives and our aim is to ensure that no one in Ireland goes undiagnosed or untreated.

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An article, ‘Raising GP awareness of Haemochromatosis’, was published in the March 2021 issue of Forum, the ICGP magazine. Thank you to the ICGP for highlighting haemochromatosis in Forum.

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The Irish Haemochromatosis Association launches an Awareness Campaign for World Haemochromatosis Awareness Week, 1-7th June, 2020. 1 in 5 Irish people carry the Haemochromatosis gene and it is Ireland's most common genetic condition. Ireland has the highest rates of the disorder in the world. Early diagnosis is vital to save lives, as lack of treatment can lead to premature death.

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World Haemochromatosis Awareness Week takes place from the 1st to the 7th June this year. To commemorate this event, Haemochromatosis International is organising an online photographic competition, FotoFeXPO

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Good news from the Irish Blood Transfusion Service. Although the IBTS are not accepting first time blood donors at the moment, they are making an exception for people with Haemochromatosis who wish to be donors. Check that you are eligible by calling 1850 731137 or go to www.giveblood .ie

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Information for HH Patients and COVID-19

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Join us at the Irish Haemochromatosis Association for the VHI Women's Mini Marathon in Dublin on Sunday 31st May, 2020 at 2pm. Registration opens on the 4th March!

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Calling all volunteers to help with Iron Games Ireland in Croke Park!

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Information Meeting, Beaumont Hospital Dublin, 6th February, 2020. All are welcome!

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Introducing the Iron Games

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Galway Information Meeting April 9th

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Mayo Information meeting Breaffy House on 4th October 2018 at 7.45pm

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What is Haemochromatosis?

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What are the symptoms?

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Who should be tested?

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