1 IN 5 IRISH PEOPLE CARRY THE HAEMOCHROMATOSIS OR ‘IRON OVERLOAD’ GENE – EARLY DIAGNOSIS IS ESSENTIAL World Haemochromatosis Awareness Week 2021, takes place this year from Tuesday 1st June to the 7th June. This year we are lighting up civic and iconic buildings in Dublin, Cork and Limerick to mark awareness week and ask the public to come behind the campaign. Early diagnosis of haemochromatosis saves lives and our aim is to ensure that no one in Ireland goes undiagnosed or untreated.
An article, ‘Raising GP awareness of Haemochromatosis’, was published in the March 2021 issue of Forum, the ICGP magazine. Thank you to the ICGP for highlighting haemochromatosis in Forum.
Dr John Ryan and Dr Laura Durcan will deliver an Information Webinar on Haemochromatosis on Wednesday, 4th November at 7pm. This online event will provide an opportunity to hear from our medical experts and ask questions about the condition.
The Irish Haemochromatosis Association launches an Awareness Campaign for World Haemochromatosis Awareness Week, 1-7th June, 2020. 1 in 5 Irish people carry the Haemochromatosis gene and it is Ireland's most common genetic condition. Ireland has the highest rates of the disorder in the world. Early diagnosis is vital to save lives, as lack of treatment can lead to premature death.
World Haemochromatosis Awareness Week takes place from the 1st to the 7th June this year. To commemorate this event, Haemochromatosis International is organising an online photographic competition, FotoFeXPO
Good news from the Irish Blood Transfusion Service. Although the IBTS are not accepting first time blood donors at the moment, they are making an exception for people with Haemochromatosis who wish to be donors. Check that you are eligible by calling 1850 731137 or go to www.giveblood .ie
Information for HH Patients and COVID-19
Join us at the Irish Haemochromatosis Association for the VHI Women's Mini Marathon in Dublin on Sunday 31st May, 2020 at 2pm. Registration opens on the 4th March!
Calling all volunteers to help with Iron Games Ireland in Croke Park!
Information Meeting, Beaumont Hospital Dublin, 6th February, 2020. All are welcome!
Introducing the Iron Games
Galway Information Meeting April 9th
Mayo Information meeting Breaffy House on 4th October 2018 at 7.45pm